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Resources

Patient Stories

Living with a urea cycle disorder (UCD) can be challenging, but it's also a journey filled with strength, hope, and resilience. On this page, we share the personal stories of individuals and families who have navigated the complexities of UCD. These stories highlight the unique experiences, struggles, and triumphs of those who have lived through this rare metabolic condition. Through their words, we hope to foster community, provide valuable insights, and inspire others on similar journeys. No one should face UCD alone—together, we can raise awareness, spread understanding, and offer support to those affected.

NUCDF Family Stories

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