2026 Back to School Webinar - Resources
-
This Guide has been developed as a resource for school personnel involved in educating and caring for children with urea cycle disorders (UCD).
-
Medical Management of UCDs in School.
Perfect for School Nurses and IEP facilitators.
Marifi Escobar - Patient Advocate
Marifi Escobar is a UCD parent and expert Patient Advocate. View Marifi's presentation from the 2024 Family Conference on the IMPACT ON DAILY LIVES, LEARNING PROCESSES, AND EDUCATIONAL CHALLENGES. Urea cycle disorders pose unique challenges in education, necessitating innovative approaches.
UCD Family and Physician
“Loads of compliments for your organization and your website: it’s clear, honest, positive as possible and it really gives us a good start in the (for us) strange world of parents with a UCD diagnosed child.”
N.J., Netherlands
