New Family Resources
UCD Guide for New Families - An easy-to-understand booklet that explains the basics of urea cycle disorders.
Emergency Letters and Personalized Information for Clinic and Hospital Visits: (downloadable)
- Getting to Know Me - We love this personalized form that introduces your child to healthcare professionals.
- My Healthcare Passport - Comprehensive information about your child and their special needs for hospital and clinic visits.
- Mi Pasaporte de Salud - Este documento personalizado puede ser llenado con información importante sobre su hijo que puede ayudar a los profesionales médicos a proporcionar un mejor apoyo durante las visitas al hospital o clínica.
- Sample Emergency Letter - edit and insert emergency instructions from your metabolic team.
- In Case of Emergency Form
- Emergency Information Wallet Card (to carry or attach to car seats, etc.
UCD Family and Physician
“Loads of compliments for your organization and your website: it’s clear, honest, positive as possible and it really gives us a good start in the (for us) strange world of parents with a UCD diagnosed child.”
N.J., Netherlands
