NUCDF is pleased to announce our 2025 Virtual Conference for Families and Physicians on Saturday, July 26, featuring a special session for healthcare providers offered in partnership with St. Jude Children's Research Hospital.
Patients, families, and medical experts are invited to join us for the NUCDF Family Conference from 11 am to 4 pm EDT to connect with others and learn from our expert panels.
Healthcare providers from across the Mid-South region and beyond are invited to join a special virtual session from 9:30-11 am EDT hosted by Dr. Andrea Gropman, MD, an opportunity to connect, collaborate and grow the UCD healthcare provider network and learn about St. Jude's Pediatric Translational Neuroscience Initiative.
Conference Agenda - Families
The NUCDF 2025 Virtual Family Conference is an internationally recognized educational and support meeting that brings together UCD patients, families, and medical experts. Attendees will network while learning about advances in research, new treatments, and cutting-edge management insights that can help improve the lives of children and adults with UCDs.
Over the last 26 years, more than 3,800 families and medical professionals have attended our annual conferences across the U.S., working together to improve the future for all those affected by UCDs.
Conference Agenda - Healthcare Providers
St. Jude Children’s Research Hospital’s Pediatric Translational Neuroscience Initiative (PTNI), in collaboration with the National Urea Cycle Disorders Foundation (NUCDF), invites you to a special 90-minute virtual session for healthcare providers during the upcoming 2025 NUCDF Virtual Family Conference on Saturday, July 26.
Led by Dr. Andrea Gropman, MD, St. Jude is excited to offer this unique opportunity to connect, collaborate, and grow the urea cycle disorder (UCD) healthcare provider network.
Virtual | Hosted by Dr. Andrea Gropman, MD, PTNI, St. Jude Children’s Research Hospital
9:30-11:00 AM EST
This session is designed specifically for healthcare providers who care for individuals with UCDs. On the agenda:
- Meet the Leaders: Hear from St. Jude's Dr. Andrea Gropman, NUCDF's Tresa Warner, and the UCD Consortium's Dr. Sandesh Nagamani
- Think Outside the Box Case Study: Learn how to identify and care for atypical presentations of UCD
- Research Update: UCD Consortium introduction and milestone overview
- Ways to Collaborate: Explore how to join research efforts, regional workshops, educational webinars, and upcoming conferences
- What's Next: Be the first to hear about future webinars and engagement opportunities
UCD Expert Presenters
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Dr. Steven Lang
