NUCDF is pleased to announce our 2025 Virtual Conference for Families and Physicians on Saturday, July 26, featuring a special session for healthcare providers offered in partnership with St. Jude Children's Research Hospital.
Patients, families, and medical experts are invited to join us for the NUCDF Family Conference from 11 am to 4 pm EDT to connect with others and learn from our expert panels.
Healthcare providers from across the Mid-South region and beyond are invited to join a special virtual session from 9:30-11 am EDT hosted by Dr. Andrea Gropman, MD, an opportunity to connect, collaborate and grow the UCD healthcare provider network and learn about St. Jude's Pediatric Translational Neuroscience Initiative.
Conference Agenda - Families
The NUCDF 2025 Virtual Family Conference is an internationally recognized educational and support meeting that brings together UCD patients, families, and medical experts. Attendees will network while learning about advances in research, new treatments, and cutting-edge management insights that can help improve the lives of children and adults with UCDs.
Over the last 26 years, more than 3,800 families and medical professionals have attended our annual conferences across the U.S., working together to improve the future for all those affected by UCDs.
Virtual | Hosted by NUCDF | 11 to 4 pm EDT
You can look forward to a blend of expert talks and opportunities to connect with one another on key topics relevant to the UCD community. We are pleased to feature insights from our UCD expert panel on the topics you highlighted as important:
- Updates on UCD treatment options (medical management, transplant, emerging therapies)
- Transition to adulthood
- UCDs and school – 504s, IEPs, vocational rehab
- Improving neurocognitive outcomes
- Optimizing diet management, including My Rare Diet update
- Family planning for carriers and affected patients
- Industry Updates: Generic Glycerol Phenylbutyrate and Clinical Trials.
Conference Agenda - Healthcare Providers
St. Jude Children’s Research Hospital’s Pediatric Translational Neuroscience Initiative (PTNI), in partnership with the National Urea Cycle Disorders Foundation (NUCDF), invites you to a special 1.5-hour virtual session for healthcare providers during the upcoming 2025 NUCDF Virtual Family Conference on July 26.
Led by Dr. Andrea Gropman, MD, St. Jude is excited to offer this unique opportunity to connect, collaborate, and grow the urea cycle disorder (UCD) healthcare provider network—especially across the Mid-South region.
Virtual | Hosted by Dr. Andrea Gropman, MD, PTNI, St. Jude Children’s Research Hospital
9:30-11:00 AM EST
This session is designed specifically for healthcare providers who care for individuals with UCDs. You’ll hear:
- Introductions to NUCDF, the UCD Consortium, and St. Jude’s PTNI program
- Updates on Dr. Andrea Gropman’s transition to St. Jude and highlights from St. Jude’s growing engagement in the UCD space
- Opportunities for healthcare professionals in education, resources, networking, and research
- Information on future UCD workshops and events
UCD Expert Presenters
