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About Us

Tell us your story!

Stories
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We want to hear from you

Stories help connect us. They make those who are newly diagnosed feel less alone. They explain the challenges of living with UCDs to the public and the scientific community, highlighting the importance of research. We believe that sharing our stories will help us all move forward together. We invite patients, caregivers, medical professionals, and anyone touched by urea cycle disorders to share your stories here. You can also reach out to us directly by emailing info@nucdf.org.

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Terms & Conditions

By accepting these terms and conditions, I agree:

  • I consent to the unrestricted use by the National Urea Cycle Disorders Foundation (and those acting with its permission and authority) of any and all content I provide here. "Content" in these Terms and Conditions means any audio, video, text, images or other material. I consent to the unlimited use of this content, for all purposes, in any form or medium, including, without limitation, its use through or on any electronic media, including the Internet.
  • I waive any right to inspect or approve the finished product or products or the advertising copy or printed matter that may be used with the content I provide.
  • Further, I relinquish all rights, titles, and interest I may have in the finished content, negative(s) and reproduction to any responsible business firm or publication. It is understood that the National Urea Cycle Disorders Foundation always retains copyright of content under the express understanding and agreement that the National Urea Cycle Disorders Foundation shall have exclusive reproduction rights to the content.
  • I hereby release the National Urea Cycle Disorders Foundation, its agents, and representatives from any and all claims in connection with the content, including any and all claims of libel.

By checking this box, I confirm that I am over the age of 18, I have read the above, and fully understand its contents. If I am the parent or guardian of a minor, I have read the above and fully understand its contents. I hereby grant permission for my child's/ward's photograph(s) to be used in the manner specified above. 

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