2025 NUCDF Newsletter Archive
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2024 Year in Review
2024 NUCDF Newsletter Archive
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Giving thanks
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October is Check Ammonia Month
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Focus on siblings
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An update on the 2024 Cure the Cycle fundraising event
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Focus on caregiver support
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A Cure the Cycle update
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All things "Back to School"
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Female OTC carrier study, Baylor College of Medicine research, Cure the Cycle Save the Date
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Mental health, family conference presentations, NUCDF on YouTube
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Family conference, Cindy Le Mons Memorial Lecture Series on Metabolism, Cindy Le Mons Memorial Fellowship Grant.
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2024 NUCDF Medical Advisory Board; Sponsor a lantern tribute; Research updates (ASLD mouse model; father-to-daughter transmission of OTC deficiency).
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Rare Disease Day 2024; A rare study opportunity; Share your story.
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Happy Holidays from NUCDF
2023 NUCDF Newsletter Archive
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Urea cycle disorders natural history study; Join an open research study; Register for family conference; Submit photos, and videos to honor Cindy Le Mons; MyRareDiet study information; Tell us your story.
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Register for NUCDF conference; Research into ASLD neurocognitive effects; DNA Today podcast; MyRareDiet study information.
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Save the date for NUCDF conference; MyRareDiet; UCDC update; Drug/treatment update; Liver transplant v. medical management app.
2022 NUCDF Newsletter Archive
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NUCDF announces death of Debra Geary Hook.
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In memory of our beloved Cindy Le Mons; New website launched; Liver transplant v. medical management app.