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2026 NUCDF Family Conference

The National Urea Cycle Disorders Foundation (NUCDF) is proud to announce the 2026 NUCDF Family Conference, taking place in Memphis, Tennessee, in collaboration with Dr. Andrea Gropman of the Pediatric Translational Neuroscience Initiative at St. Jude Children’s Research Hospital

Guided by the theme Bridge to the Future, the 2026 Family Conference will bring together individuals and families affected by urea cycle disorders, clinicians, researchers, and industry partners for a powerful exchange of knowledge, connection, and hope. This year’s conference will focus on building bridges between families and experts, research and clinical care, childhood and adulthood, and today’s challenges and tomorrow’s possibilities.

The 2026 NUCDF Family Conference, Bridge to the Future, will be held in conjunction with Urea Cycle Disorders: The Rhythm of Progress Symposium , hosted by Dr. Andrea Gropman and St. Jude in collaboration with NUCDF and our research partner the Urea Cycle Disorders Consortium (UCDC), which is part of the National Institutes of Health-funded Rare Diseases Clinical Research Network. The Symposium will take place virtually on July 17, 2026.

The 2026 NUCDF Family Conference will highlight advances in UCD diagnosis, treatment, and research, while centering the lived experiences of families. Throughout the conference, leading UCD research and care experts will be available to share their insights and interact with the community. Together, we will explore how collaboration, innovation, and community can shape a stronger future for everyone impacted by UCDs.

In addition to our educational sessions and community gatherings, we are excited to host a Saturday evening bowling and dinner event for all registered attendees — a time to come together, celebrate our community, and strengthen the bonds that carry us forward.

We look forward to welcoming the UCD community to Memphis in 2026 as we connect, learn, and build the bridge together.

The 2026 NUCDF Family Conference will be held at the Hyatt Centric Beale Street in Memphis, TN. This resort offers an ideal backdrop to our conference. It provides a place to connect with nature, friends, family, colleagues, or new experiences. The property is steps from Beale Street, 6 minutes from the Mississippi River, and 7.7 miles from Graceland. 

How to Join: Step-by-Step

  1. Click "Register Now" Button

    The first step to register is to click the "register now" button. Click the drop down menu next to "Family Registration". You will be able to include multiple family members on the same registration on the next page. Click continue, then fill out all necessary information for yourself and other family members attending the conference. You will also be asked to let us know which events you'll be attending, whether you are interested in a travel grant or research opportunities while there, and to sign a photo release.

  2. Book Your Hotel

    Once you are registered, you will be given a link to book your hotel room for the event using our hotel block discount code. Please note: If you are arriving before July 17 or staying after July 19, you will need to book your room for July 17-19, and the hotel will then need to manually add on the extra days you wish to stay.

  3. Travel Grant Applications

    If you marked on your registration that you are interested in a travel grant, we will contact you regarding the application. Registration must be made before the travel grant application will be made accessible.

  4. St. Jude Research Opportunity

    If you indicated on your registration that you are interested in participating in UCD research at St. Jude, we will contact you soon.

Register today and access special NUCDF family rates at the Hyatt Centric Beale Street

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