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Membership

The Importance of Becoming a Member

By standing together and showing our strength in numbers, our UCD community has a strong voice to stimulate public awareness and interest in research for urea cycle disorders - research that will help us conquer urea cycle disorders forever.  We are accomplishing a great deal, but there is much, much more to be done. We are on our own. Your support makes breakthroughs possible!

You make a difference in the fight against UCD.  Stay informed about "all things UCD."  Stand with us to create a brighter future for all our children and adults with UCD.

Please join our voice.  Membership is free, but the benefits are priceless ~ Membership Information & Application below.

Privacy Policy for European Union Members

Membership Information and Application

We're happy you are joining us in the fight to conquer urea cycle disorders.  NUCDF is a volunteer non-profit organization of families, friends and medical professionals dedicated to the identification, treatment, and cure of Urea Cycle Disorders. Our vision is a world where no child or adult suffers from UCD.  The benefits of membership are priceless - you can help save lives and make breakthroughs possible.

If you or your family is affected by UCD, membership benefits also include our newsletter with treatment and research updates, our networking programs, our annual conference, as well as personalized support and educational resources. Sharing information on this form about your experiences with the disorder helps the understanding of outcomes and prevalence of the disorders, and helps focus research efforts.

Please complete the following information and press "Submit Form" to transmit the information.  You will then be directed to a page where you can make a membership contribution through a secure server using Visa, MasterCard, American Express or Discover. A membership contribution is never a condition of membership, so you can complete the submission without making a contribution, but we do appreciate and need your support to achieve our mission. If you'd like to mail this form with a personal check, please print this form and mail it along with your contribution to:

 NUCDF
 75 S. Grand Ave.
Pasadena, CA 91105

Please note: NUCDF takes your privacy very seriously.  We will never release information to any outside party without your explicit written consent.

First Name *
Last Name *
Country
Address Line 1
Address Line 2
City
State/Province
Postal Code

Completing the following questionnaire is optional. However, it will assist us in understanding and supporting the needs of our urea cycle families and determining prevalence and outcome of the disorders.

A. Do you have a child that has been diagnosed with a Urea Cycle Disorder?

If you answered 'Yes' to question A, please proceed to question B. If you answered 'No', why have you decided to join the NUCDF?

B. Please complete the following information regarding all of your children, including those not affected by UCDs:

Is this child Living?
Is this child Living?
Is this child Living?

If you have been diagnosed with a urea cycle disorder:

Our goal is to educate medical professionals and provide update information about new treatments, tests, etc. Please provide your physician's contact information to be included on the physician mailing list:

D. Name of treating geneticist/metabolic specialist:

First Name
Last Name
Country
Address Line 1
Address Line 2
City
State/Province
Postal Code

J., OTCD, Germany

Thank you very much for the spring issue of the newsletter. How pleasant it is that NUCDF remembers and care about us. Each time we receive new information, I feel that we are not alone and it warms my soul. Please wish all members of NUCDF health and well-being from our family.

Best Regards,
H.B. - Moscow, Russia

I know we have talked several times over the life span of my son and you have blessed us with the guidance and knowledge that you have shared!  I also want to THANK YOU for always being there when not only my son has been in crisis but I have too!  Without your guidance I would not have my son here with us today and for that I will forever be grateful!

L.S. - USA

Congratulations! I am so happy to hear that NUCDF received the 2010 Advocacy Award Of Merit!!! You and your hard work are such an inspiration to me! My family and all the other UCD families are so lucky to have NUCDF in front of us, building a path on which we all can walk on, feeling confident and full of hope. 

X.V. - Mexico

I want to say thank you for helping children like me. I am 10 years old and I have OTC. Good luck & Best wishes! 

A.M. -  Australia

I have a grandson that has UCD.  Thank you for the time you spent speaking with me to help me understand his disorder. It is my pleasure to support NUCDF and also hope that some day there will be a cure.

S.B. - USA

The work that the Foundation has done to raise awareness and funding for the research and hopefully cure for urea cycle disorders is nothing short of amazing!

L.J. - USA

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