Links to formula and medication resources

 

MEDICAL FORMULAS FOR UCDs

 

Vitaflo

Ross Metabolics

 

MEDICATIONS AND SUPPLEMENTS FOR UCDs

Hyperion Pharmaceuticals

  • Ravicti® (phenylbutyrate in a glycerol liquid) for treatment of UCD
  • Buphenyl® powder or capsules (sodium phenylbutyrate) for treatment of UCD
SigmaPharm generic sodium phenylbutrate

Lucane Pharma

  • Pheburane granules (encoated tasteless sodium phenylbutyrate) for treatment of UCD (available in Canada and Europe)

Note: only pharmaceutical grade citrulline and arginine are recommended for use in Urea Cycle Disorders. Over-the-counter products can be of questionable potency, containing fillers, and quality and are not recommended. Underdosing could result.

Montiff Inc. - Suppliers of pharmaceutical grade L-citrulline and L-arginine. (Gives discount to NUCDF families)
3205 Santa Monica Blvd.
Los Angeles, CA 90025
Phone: (877)820-4883 Fax: (310) 582-8939
www.montiff.com

Vitaflo - Suppliers of pharmaceutical grade amino acid supplements (available by prescription) http://www.vitaflousa.com/products/metabolic-disorders/single-amino-acids/

WARNING: Citrulline Recall - certain lots from a supplier called Medisca (Medisca, Pittsburgh, PA) have been found to contain less than labeled amounts of citrulline and have been recalled by the manufacturer (see NUCDF Home Page for details). We do not recommend this product and advise that families/patients who have been using the product inform their metabolic specialist and pharmacist to obtain an alternate product as soon as possible.

Disclaimer: Information is provided for reference only and does not constitute an endorsement of any product or manufacturer by NUCDF.

 

Smiles from our 2011 NUCDF Conference

 

We are very happy to be in contact with NUCDF for the support and answers to our questions relating to this disorder. If it was not for this organization, there wouldn’t be anywhere for families like ours to turn for support and questions relating to UCDs.  C.B.