Care Notebooks - The Care Notebooks offer templates and forms families can fill in to help keep track of their child's healthcare information. Families can use these pages to keep track of appointments, medications, diets, lab results, instructions for family caregivers and respite workers, contact information of their metabolic team and pediatrician, resources, and track their child's milestones and care needs.
Care Notebook Resource 1
Care Notebook Resource 2
Emergency Letters and Personalized Information for Clinic and Hospital Visits:
Getting to Know Me - We love this personalized form that introduces your child to healthcare professionals.
My Healthcare Passport - Comprehensive information about your child and their special needs for hospital and clinic visits.
Mi Pasaporte de Salud -
Este documento personalizado puede ser llenado con información importante sobre su hijo que puede ayudar a los profesionales médicos a proporcionar un mejor apoyo durante las visitas al hospital o clínica.
Sample Emergency Letter - edit and insert emergency instructions from your metabolic team.
In Case of Emergency Form
Emergency Information Wallet Card (to carry or attach to carseats, etc.)
Preparing for Time Away from Home (Planning for Overnights/PlaydaysCamp/Vacations/Visits)
Planning Worksheets -
When preparing for a first visit away from home or to an unfamiliar place, these worksheets will help you think of things you may not have considered.
Personal Medical Identification and Jewelry