2009 NUCDF Family Conference DVD

Now Available

The 2009 Family Conference DVD is a video of the conference speaker presentations and includes:

  • Keynote Address—"Focus on the Future - New Clinical Research for UCDs"
    Mark Batshaw, M.D. Geneticist, Developmental Pediatrician, Children's National Medical Center, Washington, D.C., Rare Disease Clinical Research Centers Urea Cycle Disorders Consortium (UCDC).

  • “Focus on Discovery - MRI Imaging, Capturing Changes in the Brains of UCD Patients"
    Andrea Gropman, M.D., Neurologist, Children's National Med Ctr, Washington, D.C

  • "13 MRS Brain Imaging Study"
    Brian Ross, M.D., Ph.D., Huntington MRI Institute, Pasadena, California

  • "Focus on Outcomes - Improving Management of UCDs"
    Brendan Lee, M.D., Ph.D., Geneticist, Baylor College of Medicine, Houston, TX, Howard Hughes Medical Institute Investigator

  • "Focus on Stability - Nutritional Management of UCDs" Debra Geary-Hook, MPH, RD, Metabolic Dietician, Miller Children's Hospital Metabolic Team Center, Long Beach, CA

This valuable DVD is available for only $27.00, including shipping
and handling.

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We were absolutely thrilled to meet so many other families and see other children thriving. The information we learned at the 2007 NUCDF Conference has changed our lives -- we cannot believe how much we didn't know, and we thought we knew everything!

Thank you for the hope you have given us and for all you do to make a brighter future for our children.  You can count on our support. We will never miss another conference -- we'll see you next year!